PARTICIPATION SHEET

          

               

Project title: Evaluation of healthcare information given to new parents (Little Orange Book)

We are a group of researchers based at Northumbria, Newcastle, Teesside and Sunderland Universities and this study has been commissioned by the Newcastle Gateshead Clinical Commissioning Group (NGCCG).

You are invited to take part in a survey about your experience of using The Little Orange Book. The Little Orange Book is an information book given to parents and carers of children in Newcastle and Gateshead. It contains information and advice about using health care services for your child/children. The information you provide will be stored and used carefully to meet the General Data Protection Regulation and the Data Protection Act (2018). The study has been given ethical approval to go ahead by Northumbria University.

 

To take part in this survey:

  • You must be 18 years or over.
  • You must be a parent, carer or guardian (including grandparents)
  • You must live (or used to live) in the North East of England in Newcastle or Gateshead at the time you were given a Little Orange Book.
  • You must be able to give your consent to participate in the evaluation and fully understand what you are being asked to do and what will happen.

 

When you begin the survey, you will be asked to give a unique identifier. This is a code chosen by you. All the data provided in this survey is anonymous and it can be difficult finding your data if you would like to withdraw. You can withdraw up to 7 days after completing the study by giving this code to a member of the research team (contact details below) and your data will be destroyed.

There are limited risks to taking part in this survey. Some of the questions will ask you about your experiences of using health services to help you when your child/children has been ill. These may be difficult or upsetting for you to answer. You do not have to answer any questions that you do not want to by clicking the ‘prefer not to say’ option.

At the end of the survey, you will have the opportunity to enter into a draw to win a £25 highstreet voucher. You will also be asked if you would like to participate in a follow-up interview to further talk about your experiences. These interviews will be audio-recorded. To enter into the prize draw and to take part in the interview, you will need to provide contact details, however only the research team will have access to this information and this will be destroyed once the project is completed.

 

If you have any concerns or would like to talk to a member of the research team about this study, you can contact:

Dr Lynette Shotton (project lead) – lynette.shotton@northumbria.ac.uk 

Dr Amy Johnson (Senior Research Assistant) – amy6.johnson@northumbria.ac.uk

Dr Se Kwang Hwang (Northumbria University Ethics Lead for the department of Social Work, Education and Community Wellbeing) - sekwang.hwang@northumbria.ac.uk

 

If you feel that you need support and have been affected by any issues raised during participation in the study, the following registered charity are able to offer services to support you:

Samaritans Telephone: 116 123 (UK) / Website: www.samaritans.org.

You are able to call Samaritans for free, at any time, from any phone.

If you have immediate concerns about your wellbeing, please seek medical attention from your general practitioner or alternative health care provider. If you require out of hours medical care, you are able to contact NHS 111 for assistance or dial 999 in an emergency situation.

 

Please click here about detailed information about the study. Required